Research Case Studies
Case study examples of how we have enabled research across the UK.
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How public contributors are influencing access to health data through the NHS Digital Trusted Research Environment Service for England
Involvement of patients and the public in data access processes, including access requests through Trusted Research Environments (TREs), is vital to ensuring the trust and support of those whose...
Our Open Access Publication of the Month – November 2021
Investigating severe COVID-19 outcomes after vaccination and tracking development assistance for health and for COVID-19.
PIONEER’s public conscience – reflections on the first year of the Data Trust Committee
PIONEER, the Health Data Research Hub for Acute Care, reflects on the impact that their Data Trust Committee has had on access to health data for research.
Redefining β-blocker response in heart failure patients with sinus rhythm and atrial fibrillation: a machine learning cluster analysis
Overview Researchers have used new artificial intelligence (AI) techniques to identify which patients with heart failure do, or do not, benefit from beta blockers. Their approach interrogates data...
Our Open Access Publication of the Month – October 2021
Predicting emergency hospital admissions in Scotland using a population-scale machine learning tool.
OMICSPRED – a living resource for predicting multi-omics data directly from genotypes
Overview The identification of new biomarkers for disease can provide a valuable indication of an individual’s risk of certain illnesses and even indicate the best treatments. This makes it an...
How unlocking health data shaped the COVID-19 vaccine rollout
In December 2020, the Pfizer-BioNTech and Oxford-AstraZeneca vaccines against COVID-19 were approved for use in the UK. While these vaccines had been thoroughly tested in clinical trials involving...
How the HDR UK Public Advisory Board are driving involvement of patients and the public in data access processes
There’s nothing quite like throwing a small pebble into a still pond and watching the ripples spread out across the surface. Being a patient and public representative often feels like being a...
SPIRIT-PRO Extension explanation and elaboration: guidelines for inclusion of patient-reported outcomes in protocols of clinical trials
Overview Patient Reported Outcomes (PROs) can provide valuable evidence on the impact of disease and treatment on patients’ symptoms, function and quality of life. High-quality PRO data from...