Opinion
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Computable knowledge Part 2 of 2: Learning from the HDR UK collaborathon – make it FAIR!
The previous blog article explained the concept of computable knowledge and why we need it in Learning Health Systems (LHS). Now we report on a recent HDR UK Better Care Catalyst initiative to...
Patient-Reported Outcomes for Better Care, Better Research – what next?
At the end of last year, I was privileged to co-chair the inaugural “PROs for Better Care, Better Research” round table, convened by HDR UK, Better Care community in partnership with...
Collaboration and open data at its best: UK Biobank and HDR Innovation Gateway
As a member of the Health Data Research Alliance, UK Biobank has partnered with HDR UK since 2018. This month, UK Biobank listed several subsets of the Biobank dataset on the HDR Innovation...
Computable knowledge Part 1 of 2: What is it and why do we need it to build a Learning Health System?
HDRUK is all about health data, right? Wrong! Data on its own is meaningless and useless. Data collection only becomes worthwhile when we derive actionable insight from it – a piece of knowledge.
Better Care Insight Sharing Day
On 14 January 2021, I had the opportunity of joining over 80 researchers from HDR UK’s Better Care community to virtually share learning, challenges, and opportunities in delivering the...
The promise of AI for health data research
The 2020 UK Health Data Research Alliance Symposium tackled some of the biggest topics in health data research. Panellists Jim Hendler, Cian Hughes and Laura Robinson explored the promise of using...
Can genetics help us to understand why people with severe mental illness have an excess risk of heart disease?
People with severe mental illness (such as schizophrenia, bipolar disorder and major depressive disorder) have a reduction in life expectancy of up to 25 years. That is the difference between...
How do we collect, store and manage data about people’s SARS-CoV-2 samples?
Once someone has tested positive for COVID-19 and their sample has been selected for sequencing by The COVID-19 Genomics UK (COG-UK), what happens to their sample data? How do we link...
The Case for Cohorts – Revealing the ‘Before and After’ Response to COVID-19
Throughout 2020, we witnessed an unquenched thirst for information on the COVID-19 pandemic and - in most quarters - a remarkable willingness to change our normal behaviour to help protect the NHS...