Our QQ2 vision is based on delivering cross-cutting research infrastructure services which address the challenges of data access and enable Research Demonstrator programmes which in turn will drive the core infrastructure services. Throughout October and November we will be developing the vision and delivery approach for these programmes.
The details of the QQ2 programmes and their co-ordinating teams are outlined below. These are suggested programmes which will be submitted as part of the proposal to our core funders. No funding is yet confirmed and there is no certainty that the programmes will go ahead. If positively evaluated by our Core Funders, these programmes will start April 2023.
Dates for any community workshops will be added as they are confirmed. We welcome input into these workshops from across the HDR UK and wider heath data community as they will be critical to shape our QQ2 programmes.
Please do reach out to any of the programme convenors if you would be interested in discussing the programme in more detail.
We have set up Slack channels for each of our QQ2 programmes. Please register here to join these channels and get involved.
We are looking forward to convening the full HDR UK community and partners for a third Frontiers meeting on 15 November 2021 to discuss our final QQ2 proposals – details and registration information here. This meeting will run from 2.00pm to 5.00pm with the option to attend in person (at the Wellcome building in Euston) or virtually via Zoom.
Health-research led programmes creating UK-wide data foundations for up to 68 million people across a range of data types (e.g. environmental, molecular, pathogen, electronic health records) linked to routine health data; conducting and enable researching using these foundations that demonstrate how data can ‘power-up’ and transform health research
Molecules to Electronic Health Records:
Connecting our genetic data with day-to-day data about our lives to enable discoveries about causes of diseases, John Danesh, Sarah Lewington
Inflammation and Immunity:
Connecting data about inflammation (e.g. respiratory, neurodegeneration) to enable improvements in health, Aziz Sheikh, Jenni Quint
Big Data for Common Complex Disease:
Connecting all of the data foundations to tackle cancer, cardiovascular disease and dementia, Mark Lawler, Cathie Sudlow
Pandemics and Outbreaks:
Connecting data about pathogens to data about us, Kennie Baillie, Sharon Peacock
Environmental and Societal Determinants of Health:
Connecting data on all of us over time with environmental data to enable understanding of childhood health and aging and to enable improvements in health for all of us (ensuring we are all represented), Paul Elliott, Ruth Gilbert
Data Driven Innovation in Medicines and Acute Care:
Connecting data about medicines and care we are receiving to enable improvements in care and treatment, Munir Pirmohammed, Liz Sapey
Driving health data research discoveries by providing researchers, innovators and citizens with a federated and open multi-disciplinary UK-wide health data research environment where they can find and use data, tools and services for research, innovation and educational purposes. This will require a shared infrastructure network of data expertise, services and standards. This includes Public, Patient and Practitioner Involvement and Engagement (PPPIE), the UK Health Data Alliance, the Innovation Gateway, training programmes and data research hubs; identifying and implementing trustworthy data services that are user-centred, applicable across research domains and technologies, scalable, and sustainable.
Public, Patient and Practitioner Involvement and Engagement (PPPIE)
Informing, engaging & empowering, involving and influencing patients, the public and practitioners to enable trustworthy and accountable research at scale, Sinduja Manohar, Chris Monk
Workshop: Wednesday 3 November 2021, 10.00-12.00pm
UK Health Data Research Alliance
Bringing together the UK’s data custodians to establish best practice for the trustworthy and ethical use of UK health data for research at scale, David Seymour, Paola Quattroni
Alliance – Governance & Ethics
Providing thought leadership and expertise to enable innovative approaches to data governance, enabling streamlined data access through TREs and helping data custodians realise benefits for patients, Cassie Smith
Alliance – Data Standards & Quality
Implementing data standards and quality improvements to support federated research across data custodians, Ben Gordon, Monica Jones
Innovation Gateway Services
Providing UK’s consolidated discovery resource for health research datasets, papers, tools & projects, Charles Gibbons, Helen Parkinson
Gateway – Prognostic Atlas
Generating data-driven prognostic information, Harry Hemingway, Emily Jefferson
Gateway – Federation Services
Enable secure federated analytics across UK-wide TREs, Dave Robertson, Carole Goble, Susheel Varma
Talent & Training
Developing the skills and expertise for UK-wide health data research, Chris Yao, Sarah Cadman
Tools for Trials
Enabling the widespread use of healthcare systems data and patient-generated data across the clinical trials lifecycle, Marion Mafham, Matt Sydes
Hub & Data Science Network
Enable a network of Hubs implementing and developing best practice in data curation and access, Ben Gordon, Kay Snowley
Local networks enabling participation, knowledge sharing and engagement across all regions of the UK; ensuring the Demonstrator Programmes and Infrastructure Services draw on data, partnerships and communities across the UK.
Cambridge, John Danesh, Angela Wood
London, Harry Hemingway, Sinead Langan
Midlands, Alastair Denniston, Fiona Pearce
Wales & Northern Ireland, David Ford, Sinead Brophy , Dermot O’Reilly
North, Munir Pirmohammed
Scotland, Dave Robertson, Emily Jefferson
Oxford, Eva Morris, Celia Lindgren
Southwest, Jonathan Sterne, Rachel Denholm
Keeping in touch
We have set up Slack channels for the proposed QQ2 programmes to support communication between the programme convenors and our wider HDR UK community. If you would like to join any of the channels, please register here.
For regular updates on the QQR and other research developments please sign up to our monthly research newsletter.