This is an exciting new role providing an excellent opportunity for someone who is looking to use and enhance their research governance and project management skills to improve trustworthy access to health data for research and innovation that has the potential to transform lives. The successful candidate will work across the entire organisation to provide information governance support to a range of high-profile public health initiatives including cutting edge efforts to coordinate UK health data infrastructure and facilitate life-changing research in the UK and abroad. This includes regular work with universities, funders, and governmental entities regarding complex data infrastructure and research projects. This fast-paced role will involve regular contact with senior internal and external stakeholders.
The successful candidate will share our values, have strong collaboration skills, be comfortable with working at pace and have a passion for professional, high-quality approaches to engagement. The successful candidate will be part of HDR UK’s growing Legal, Trust & Ethics team and will report to the Information and Research Governance Manager.
Main responsibilities
- Developing and implementing innovative data governance processes and policies to ensure the safe, secure and trustworthy use of sensitive data for research.
- Disseminating HDR UK’s innovative work on health data governance, including drafting and contributing to blogs, bulletins, peer reviewed articles and other publications.
- Engaging partners across the health data landscape and wider communities to develop and define best practice including resources and materials that can be adapted and re-used.
- Supporting partners to adopt best practice in data governance including supporting with overcoming challenges that have the potential to block or slow down research.
- Successfully planning and delivering stakeholder workshops, meetings, and events across multiple organisations.
- Working closely with our Public and Patient Involvement and Engagement (PPIE) team to involve and engage members of the public, including HDR UK’s Public Advisory Board, in the use of health data for research and data governance.
The successful candidate will have the following:
- Experience of information governance within research, ideally including experience of implementing or operating successful information governance and/or data access processes.
- Demonstrable experience of planning, running and evaluating activities.
- Success in running several projects at once to similar timeframes with conflicting priorities.
- Experience of facilitating meetings and delivering presentations.
- Excellent experience in collaborating across teams and/or organisations to help create and co-deliver shared goals.
- Experience of working on diverse projects with stakeholders from different disciplines and appreciation for differences between working practices and regulatory regimes.
- Ability to develop relationships with stakeholders within and outside immediate role.
- Excellent communication skills, written and verbal, including the ability to explain concepts without technical jargon and communicate confidently with people at all levels.
- Ability to analyse complex scenarios, distil key points, identify innovative approaches, show initiative and take pragmatic actions.
