The programme aims to address the current fragmentation of the UK data infrastructure by working in partnership with stakeholders from across the four nations to organise health data on an unprecedented scale. NCS datasets are available to request access to via the Health Data Research Innovation Gateway.
The Data and Connectivity programme works to make vital data available to accelerate research on COVID-19. It is led by HDR UK in partnership with the Office for National Statistics.
The Data and Connectivity programme is one of six studies, known as the National Core Studies, that support the UK’s research response to COVID-19. Established by the government in October 2020, the six National Core Studies use health care data to identify and respond to essential questions on COVID-19 to inform policy and planning in the UK.
Data and Connectivity supports the five other National Core Studies by providing and connecting data needed for research and enables streamlined data access.
The other five study areas include:
- Longitudinal Health and Wellbeing
- Transmission and Environment
- Surveillance and Epidemiology
- Clinical trials
How Data and Connectivity makes data available
Data and Connectivity brings together key assets of the UK data infrastructure by working in partnership with stakeholders from across the four UK nations to organise medical, biological, and social science data on an unprecedented scale.
The programme works with six partners to deliver streamlined access to a variety of health and administration data via six secure Trusted Research Environments across the four nations:
- England: Office for National Statistics’ Secure Research Service
- England: NHS Digital’s Data Processing Service
- Wales: SAIL Databank
- Scotland: National Data Safe Haven
- Northern Ireland: Honest Broker Service
- England: OpenSAFELY
Data and Connectivity works to onboard key datasets identified for research by the other National Core Studies into the six Trusted Research Environments to enable streamlined data access and analysis. Data produced by the National Core Studies themselves will also be made available in the research environments.
What data is being made available
Data and Connectivity will use and build on the Health Data Research Innovation Gateway.
Information about the data made available in the six Trusted Research Environments for the National Core Studies can be found on the Innovation Gateway. Researchers can also request access to data via the Gateway.
Who is leading this work
Data and Connectivity is led by HDRUK in partnership with the Office for National Statistics. Professor Andrew Morris, HDRUK’s Director, leads the programme, supported by several colleagues:
How to get involved
- To explore datasets and request access, please visit the Health Data Research Innovation Gateway
- Data custodians: if you are interested in adding information about the data you hold to the Innovation Gateway, please contact firstname.lastname@example.org
- Visit our page on patient and public engagement and involvement.
- Share your thoughts on Data and Connectivity, email email@example.com
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