The INSIGHT Health Data Research Hub is:
- Ensuring anonymised eye data is available for research intended to benefit patients
- Focused on eye health but research could lead to breakthroughs in a wide range of conditions, including diabetes and dementia.
- Committed to putting patients and the public first.
- Applying the highest standards of ethics, transparency, and safety to its activity.
The datasets curated by INSIGHT are available through the HDR UK Innovation Gateway.
Data access applications are reviewed by INSIGHT’s Chief Data Officer, before being passed to our Data Trust Advisory Board (DataTAB). The DataTAB is formed of members of the public, patients, and other stakeholders joining in a private capacity, who bring their own experience to ensure diverse representation of opinions and perspectives. The DataTAB scrutinises individual applications using a set of principles based on the ‘Five Safes’ approach and other public benefit criteria. Applications are accepted or rejected in a transparent manner and successful applicants will be subject to strict licensing agreements that prioritise data security and patient benefit.