Health Data Research UK is uniting the UK’s health data to enable discoveries that improve people’s lives.
Our vision is that every health and care interaction and research endeavour will be enhanced by access to large scale data and advanced analytics.
Why does this matter?
By making health data available to researchers and innovators we can better understand diseases and discover ways to prevent, treat and cure them.
Challenges to human health and health system sustainability are increasing globally. Heart disease, stroke and cancer still account for nearly two thirds of all deaths globally. These diseases affect us deeply – they change the lives of those with the diseases and those who care for them. By making health data available to researchers, we can develop a better understanding of these diseases and ways to prevent, treat and cure them.
Why is the UK the best place to do this?
The UK has some of the richest health data of anywhere in the world. With the NHS it is feasible to collect health data on a large and diverse population, and to make national-scale improvements to health and care. Combined with unique research expertise, outstanding talent in the NHS and universities, and a vibrant life sciences industry, the UK has an unprecedented opportunity to use data at scale to drive innovation, grow the UK industry base and improve the long-term health of the public.
How are we doing it?
We are uniting health data assets across the UK to make health data research and innovation happen at scale. We work with people who share a common set of values:
- We are transparent: we will share information, insights and innovations so that we learn faster together.
- We are optimistic: we believe that we can make things better, that we can do things differently and that we can overcome challenges to create a new and thriving health data ecosystem that benefits patients and the public, the NHS, scientific discovery and industry.
- We are respectful: we deliver better results when we work in a truly interdisciplinary way. We listen, share and respect a diversity of thought and opinion, perspective and experience. We are inclusive – leveraging and fairly attributing the expertise and capabilities of others, including patients, carers and members of the public.
- We act with courage: we are leading the way and will be prepared to try new things, take risks, embrace ambiguity and challenge the status quo. We will contribute opinions to shape the future of health data research.
- We act with humility: we have a lot to learn from others; and aim to be open-minded about the gaps in our knowledge. We work diligently to find partners who can help fill those gaps and value and respect their contribution.
Who are we?
We are an independent, non profit organisation supported by 10 funders and bring together universities, NHS organisations, industry partners, patient groups and research institutes across 20 locations across the UK. We have a head office in central London.