Patient and Public Involvement Opportunities

“Research and healthcare data starts and ends with patients and the public. In fact, to have the highest impact, patients and public have a vital role to play at every stage.” – Dr Amitava Banerjee, Associate Professor in Clinical Data Science


Opportunity to get involve – CovPall-Connect: Evaluation of the COVID-19 pandemic response in palliative and end of life care

The COVID-19 pandemic is causing a huge strain on health care services. The national lockdowns, social distancing, and requirement for some vulnerable people to shield has meant more challenges for people with other advanced diseases and / or who need palliative care.

This research project was successfully awarded through a rapid funding call by Health Data Research UK, Office for National Statistics and UK Research and Innovation and is being led by professors from Kings College, London. You can read the lay summary of the project here.

The researchers would like to invite patients and members of the public to be involved in this project. They will be hosting an online meeting through Zoom on the 11th of May 3-5pm and are looking for 15 individuals with experience or interest in life limiting illnesses. They would like hear about your experiences in the pandemic, as well as your views on how health and social care areas can be improved to meet public and patient needs.

Click here for more information and how to apply

If you are interested in being involved or have any questions, please email Harry Watson (Harry.Watson@kcl.ac.uk) by Monday 3 May 2021.


Included on behalf of Prof Tim Chico for the ECHOES project, University of Sheffield:

Lay Members required to shape ‘ECHOES’ cardiovascular research funding application

ECHOES is an international team of doctors, researchers, scientists, and industrial partners aiming to make a giant leap in cardiovascular healthcare – and we need the essential input of patients and the public to shape and develop the funding application to best address the needs of individuals with all forms of heart disease. The ECHOES team has been shortlisted in the British Heart Foundation ‘Big Beat Challenge’, and we are now working to shape our full application. You can read more about the project here.

We are looking to recruit up to eight lay members to co-develop this with us, who would be available to devote up to 20 hours between April 30th – June 6th 2021 to this role and actively participate in 2-3 application steering group meetings.

Click here to view the role profile and application form

The application deadline is Friday 23rd April, and completed application forms (available via weblink above) should be e-mailed to Professor Tim Chico (t.j.chico@sheffield.ac.uk)


Wednesday 23 June 2021 – HDR UK Scientific Conference: Data Insights in a Pandemic

Health Data Research UK – the UK’s national institute for health data science – is pleased to welcome attendees from industry, academia, healthcare, as well as patients and the public, to its fourth annual conference.

Join us for this dynamic and exciting virtual event, which will showcase the latest progress in health data science.

This conference aims to inform and educate a broad audience, by showcasing world-class science which delivers impact nationally and globally. HDR UK will bring together the health data science community across the Institute, as well as the broader UK and international health data science communities – including public and patients – to foster knowledge-sharing and collaboration.

Click here to find out more and register to attend


 

SAIL Databank Consumer Panel – WALES ONLY

The Secure Anonymised Information Linkage (SAIL) databank focus on anonymising and linking routinely collected data to help develop health and care research. To help them build and sustain public trust their Consumer Panel play a key role. As well as providing ideas on engaging with the public they advise on bids through approval processes, review information for a lay audience, offer advice on how to recruit reps to study steering groups and much more.

The Consumer Panel have an ongoing recruitment process and are looking to ensure they have a range of people with different perspectives involved. If you’re based in Wales and are interested in getting involved, you can get in touch with the Swansea based team at dsbconsumerpanel@swansea.ac.uk

Find out more and get involved


Diversity and Inclusion

At Health Data Research UK, we embrace diversity and all the ways we are different – visible and non-visible alike and believe diversity and inclusion fortifies each part of our Institute. We are committed to creating and running inclusive opportunities for patients and members of the public to get involved and truly engage with our work. We are actively building relationships with a variety of networks and populations to enable us to shape our work through a diverse and representative range of views and ideas and ensure the opportunities are run in a way that meets the needs of people we are looking to involve.

Health data affects everyone and we want to encourage everyone who has an interest in health data (including whether or not you are pro-access to health data) to get involved. If you have any questions or any ideas or suggestions on how we can improve the inclusivity of our patient and public involvement and engagement activities please get in touch at feedback@hdruk.ac.uk or call 07597 552671.

Have an opportunity to promote?

If you’re working on a project that would benefit from patient and public involvement and engagement that you’d like us to help promote, get in touch at enquiries@hdruk.ac.uk