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Building confidence in responsible data use for research requires clear, practical regulation and maintaining the safeguards needed to protect public trust, as we highlight in our response to the...
Public voices continue to take centre stage as we welcome new Public Advisory Board.
Access to health data for research in the UK is shaped by a complex legal and governance framework that is harder to navigate than it needs to be. Cassie Smith sets out the key legal barriers and...
Find out how this London-Underground-inspired guide can help researchers better understand the pathways for secure data access.
With Equality, Diversity and Inclusion (EDI) programmes under increasing scrutiny — criticised by some as being 'meaningless nonsense' and by others as not going far enough — Clare Matysova,...
Clarifying policy scope, linkage to non-NHS data, the need for bold approaches to harmonised data access processes, and the role of co-design and public involvement in decision making highlighted...
Ten years ago, on the day the NHS was 65, Genomics England was launched. Setup to deliver the 100,000 Genomes Project, it provided evidence to justify use of whole genome sequencing for individual...
Since its inception in 2019, the UK Health Data Research Alliance has seen its membership grow steadily to include diverse partnership working with public agencies, academia, NHS Trusts and...
HDR UK joins the Health Research Authority and a host of other organisations to sign the Shared Commitment to Public Involvement in Health and Social Care Research
