One in every five people will have a lung condition in their lifetime, such as asthma or chronic obstructive pulmonary disease (COPD). The UK’s abundance of secure health data provides a unique opportunity to better understand causes, prevention, diagnosis and treatment of respiratory diseases, helping to improve outcomes for those affected.

At present, it is difficult for researchers to access and link datasets on lung health for large-scale healthcare innovation. Changes are needed to help enable the improvement of collection, storage and safe use of respiratory-related data by data controllers, to empower impactful research and inform policy.

What is the Respiratory Data Science Catalyst?

The Respiratory Data Science Catalyst is a unique partnership working to facilitate and accelerate health data research into chronic and acute respiratory conditions. It aims to improve respiratory health by enabling data-led research, and its work will encompass several themes, including:

  1. Developing near real-time dashboards
  2. Using population-level health systems data in research
  3. Defining respiratory disease and its consequences
  4. Defining opportunities in NHS Imaging, Spirometry data, and environmental data
  5. Using smartphones and wearables data in research
  6. Enhancing follow-up in respiratory data
  7. Developing data-driven clinical trials
  8. Training researchers and clinicians
  9. Involving people affected by respiratory health.

Webinars and podcast

  • The Respiratory Data Science Catalyst launched a monthly academic webinar series to showcase how data can be used to answer important respiratory questions.

    The series takes place on the first Wednesday of every month from 11:30-12:30 and will showcase various topics including:

    • The environmental impact of Respiratory Health, particularly on the use of medical equipment
    • The effects of climate change on respiratory health
    • How wearable devices (such as smart watches) provide data to assist with diagnosing and managing lung conditions
    • The latest epidemiology data on Tuberculosis rates and resistance patterns
    • The use of AI in Imaging for diagnosis of respiratory conditions

    Each 1-hour webinar is jointly presented by a Senior Researcher and an Early Career Researcher, and includes a Q&A session.

    Explore our upcoming events

  • On Tuesday 29 October 2024, the Catalyst hosted its introductory webinar. You can view a recording of the webinar below.

  • Professor Jenni Quint, Director of the HDR UK Respiratory Data Science Catalyst, discusses how health data science can facilitate and accelerate respiratory disease research, with various guests.

    Tune in every month to explore the real world challenges and opportunities that health data research can help tackle, when it comes to chronic and acute respiratory conditions.

    Click the tab in the top right of the video to view all episodes in the playlist

Blog Post

  • What happened to asthma, chronic obstructive pulmonary disease (COPD), and interstitial lung disease (ILD) during—and after—the pandemic?

    That’s a question we tackled in our recent paper, where we investigated incidence and prevalence trends in three major chronic lung conditions across England, Wales, Scotland, and Northern Ireland. Our study spanned two decades, from 2004 to 2023, using harmonised electronic health records. We explored how diagnoses changed over time and examined disparities by sex, region, deprivation, and ethnicity. Our findings highlighted the sharp drop in diagnoses during the COVID-19 pandemic—along with early signs of recovery by mid-2023.

    Now, with an additional two years of data from England, extending our analyses to March 2025, we’ve been able to revisit these trends and ask whether diagnosis rates have returned to pre-pandemic levels and whether inequalities persist. These updated analyses, supported by the British Heart Foundation Data Science Centre and carried out within NHS England’s Secure Data Environment, allow us to explore what has changed since the pandemic—and, just as importantly, what hasn’t. It is important to note that for March 2025, the data were not complete which explains the significant drop in rates across all conditions and groups.

    Our new data confirm that diagnosis rates for asthma, COPD, and ILD increased after the initial disruption to routine care. However, that recovery has not been equal across all population groups.

    • Men remain more likely to be diagnosed with both COPD and ILD, while asthma continues to be more common in boys (under 18) and in adult women (Figure 1).
    • People living in more socioeconomically deprived areas continue to experience higher rates of all three conditions. These inequalities have remained stable across 2023 to 2025, with no clear signs of narrowing (Figure 2).
    • When examining differences by ethnicity, White and Asian individuals show higher ILD incidence. COPD remains most common among White individuals, while asthma incidence is highest in those of White, Asian, and Mixed ethnic backgrounds (Figure 3).
    • Regional variation also persists. The North East and North West of England consistently report the highest incidence of COPD and ILD. Interestingly, there is some evidence of a narrowing regional gap for COPD but a potential widening for ILD (Figure 4).

    These trends raise critical questions about access to care, environmental exposures, and the long-term impact of delayed diagnoses. While routine healthcare services have largely resumed since the COVID-19 pandemic, our findings indicate that the impact of the pandemic on these services and population health may linger for years.

    So, what’s next? We hope this updates data prompts further questions and action. We need to think seriously about how we can close the diagnostic gap and ensure that healthcare and management of chronic respiratory diseases is equitable. We will be exploring these issues in greater depth in our upcoming work and welcome collaboration with others in this space.

    If you would like to read more, you can find our original work published in Thorax here and aggregate data for the diagnosis rates illustrated in our figures are available here.

    If you would like to hear about upcoming related work, or explore opportunities to collaborate, please get in touch.

     

     

     

Contact us

For the Catalyst to succeed and deliver the change that is needed in Respiratory Health, it is vital it listens to voices across the community, and involves them in its plans to succeed.

The Catalyst wants to engage with stakeholders who have an interest or expertise in improving Respiratory Health, including patients, researchers, clinicians, societies, and industry partners.

If you would like to get involved, please contact the Respiratory Data Science Catalyst on respiratorycatalyst@hdruk.ac.uk.