Brain Health and Neurodegeneration
Our Brain Health and Neurodegeneration programmes and partnerships aim to bring greater coherence across a complex range of activities.
Overview
Neurological conditions are the leading cause of ill health and disability worldwide, with over 1 in 3 people affected. This growing global healthcare challenge calls for urgent action.
At Health Data Research UK (HDR UK), we believe that accelerating the trustworthy use of large-scale data assets that are currently fragmented and typically inaccessible to the research and innovation community is essential to unlock urgently needed research breakthroughs into brain health and neurodegenerative diseases. Our Brain Health Partnership programmes aim to build on several existing partnerships to bring greater coherence across a complex range of activities.
Explore the programmes
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AD Data Initiative Data Pilots
The Alzheimer's Disease (AD) Data Initiative Data Pilots are two exemplar 'data pilot' research projects that aim to answer key dementia research questions, by expanding access to high value UK...
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NEURii
The NEURii programme aims to bring digital solutions to market, which use routinely collected health data to complement approved treatment options for dementia.
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Dementia Trials Accelerator
The Dementia Trials Accelerator (DTA), supporting the government’s Dame Barbara Windsor Dementia Goals programme, will expand the opportunities available for people at risk of or diagnosed with...
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MND Research Data Catalyst
The catalyst will accelerate Motor Neurone Disease (MND) research and support better care for patients, through collaboration and harnessing the UK’s trustworthy, large-scale health data...
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TBI-REPORTER
TBI-REPORTER is the UK research platform for curating, collating, depositing, and discovering Traumatic Brain Injury (TBI) data at scale.
Accelerating Brain Health-related research through collaboration
The vision of our Brain Health Partnership programmes is to accelerate trustworthy large-scale data use and empower ambitious, collaborative, neurodegeneration research and innovation, that delivers impact for patients.
We are working to support researchers to go beyond what is currently possible with consented research data resources through increased use of large, routine data assets, including data held across the UK’s National Health Service (NHS).
We work in close partnership with a range of existing dementia and neurodegeneration research data platforms and welcome further opportunities for collaboration and investment, to assemble the partnerships, data, and infrastructure required to meet the needs of the neurodegeneration research and innovation communities.
We work in close partnership with a range of existing dementia and neurodegeneration research data platforms and partners including the UK Dementia Research Institute, Dementias Platform UK, and the Alzheimer’s Disease Data Initiative. We welcome further opportunities for collaboration and investment, to assemble the partnerships, data, and infrastructure required to meet the needs of the neurodegeneration research and innovation communities.
Partnership Objectives
- Accelerate trustworthy data access and use of large-scale data assets, directly aligned to the needs of neurodegeneration researchers and innovators, by connecting existing multi-modal data across the UK and internationally.
- Empower novel, ambitious, and collaborative neurodegeneration research and innovation partnerships that accelerate impact for dementia patients, while leaving a data foundation legacy that adds value to the wider neurodegeneration research and innovation system.
- Streamline neurodegeneration health data science by convening partners across the neurodegeneration research data landscape to align and promote convergence towards common standards, reducing complexity across a fragmented landscape.
