Jillian Hastings Ward is a patient advocate and rare disease parent. She is the independent Chair of the Participant Panel at Genomics England, whose role is to represent the interests of participants in research studies such as the 100,000 Genomes Project. Jillian joined the project in 2015, in search of a diagnosis for her young son, who is severely disabled.
Jillian is a founding board member of the CureGRIN Foundation, a US-based parent-led non-profit organisation seeking to drive forward research into GRIN gene disorders around the world. She is also a lay member of the NHS Digital Research Advisory Group.
Her background is in consultancy and the UK civil service.