Claire has Usher Syndrome type 2, a genetic condition causing hearing loss from birth as well as progressive sight loss in her late teens due to Retinitis Pigmentosa, leaving her now deafblind. She is a participant in the 100,000 Genomes Project and has had various genetic testing and counselling. She brings an understanding of genetic data as well as personal interest. She was a carer for her mother who battled breast cancer over 8 years, something that taught her a lot about the hospital care system and recognising the importance of patient and family inclusion in all aspects of treatments and care. Claire’s official role with guide dogs is ‘Volunteer Community Fundraising Administrator’, whom she has worked with for 5 years, and she has done various campaigns, as well as public engagements with the media, and continues to do so.
Claire is a mother, wife, guide dog owner to Minnie, and has taken part in a number of endurance and adrenaline events including the Tough Mudder in 2014 and a skydive in 2015 in aid of the Molly Watt Trust – raising money for assistive technology that can enhance the life of somebody living with Usher Syndrome (deafblindness) while raising awareness and supporting research into Usher Syndrome.