The Public Engagement in Data Research Initiative (PEDRI) unites organisations using data for research and statistics to create a culture of good public engagement and involvement in the sector.
Our Good Practice Standards are built on two years of collaboration with the public and professionals. They help data organisations and researchers work well with the public.
You or your organisation can get involved. PEDRI members range from organisations who manage data, to public engagement practitioners, data researchers and public-led groups across the United Kingdom.
Info about what we do in the PPIE team:
At HDR UK, patients and the public are not just involved in health data research—they are true partners. Through collaboration and co-production, we are shaping research with them, not just for them.
Our Patient and Public Involvement and Engagement (PPIE) mission is to establish good practices in patient and public involvement and engagement, which can improve research, innovation, transparency, public trust and confidence within our organisation and the wider health data research sector.
Our PPIE vision is for all health data research to deliver benefits to diverse people, research and innovation by listening to the needs and concerns of patients and carers, and by enabling shared decision-making throughout the research process.
Find out more, including how you can get involved.
