Health Data Research UK (HDR UK) are delighted to publish the latest Green Paper on Data Standards, building on the principles outlined in initial consultation paper published in June 2020. The Green Paper encourages improvements in data usefulness and usability, with the aim of supporting research through the provision of clear guidance and recommendations. The standards were developed in collaboration with the health data community – including data custodians and users – as well as patients and the public.
Through the updated Green Paper, HDR UK aims to:
- Develop an overview of current landscape of data standards.
- Gain insights into data standards 1) that custodians should be implementing, and 2) the information users require within this landscape.
- Increase the speed at which research can progress within health data domain, and the overall volume of valuable research.
The Green Paper will solidify HDR UK’s position on data standards following further engagement with the health data science community. HDR UK actively encourage health data organisations to adopt these principles as a broad guide, with acknowledgement of the potential financial implications of adoption for some organisations.
As part of the public consultation, HDR UK is seeking further feedback and engagement from organisations and key policy makers regarding lessons or challenges raised from implementing the suggested standards and recommendations. Those who wish to feed in have until 16 June 2021 to provide their thoughts via the Data Standards survey. This feedback will then be incorporated into the updated White Paper, due to be published during summer 2021.
We’re working with our colleagues across the HDR UK community and with our partners to establish and implement common standards for the quality of data used in research.
COVID-19 National Core Studies Symposium
24 June 2021 at 9:00 am
Accelerating UK data driven insights in a pandemic