Opinion
As the UK's national institute for health data science, we are uniting the UK’s health data to enable discoveries that improve people’s lives. Stay up to date on the latest views and opinions from our community and beyond.
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Co-producing HDR UK’s first patients and the public celebration
Ester Bellavia reflects on the success of our first in-person Patient and Public Involvement and Engagement (PPIE) celebration event and key takeaways.
Challenges and opportunities for involving and engaging patients and the public, as an early career researcher
Are you an Early Career Researcher (ECR) passionate about making a difference in health research? Ester Bellavia, Patient and Public Involvement and Engagement Manager at HDR UK, talks about an...
Public Involvement and Engagement Practices in Data Research and Statistics: Insights from PEDRI Public Consultation
Updated January 2025: To access the most recent version of the Good Practice Standards from the the Public Engagement in Data Research Initiative (PEDRI), please visit the PEDRI website. In...
How do HDR UK decide who wins the Patient and Public Involvement and Engagement (PPIE) Award?
Jan Speechley is a member of our Public Advisory Board and it has been a pleasure to have her chairing our Patient and Public Involvement and Engagement Award Panel meetings. In this blog, she...
Science Festivals: Reaching out to new audiences about health data
It was an unusually hot September weekend. Many of you will have spent your time relaxing in 30°C sunshine at the beach or your local park. Our hard-working HDR UK team? We were talking about all...
Antony: Making my voice heard to support the millions of people living with chronic pain
Why do I do this? Some of it's about the pain and raising pain awareness, but it’s also about making a difference. The key is to keep asking questions, be curious, and be kind.
Ed: Better to light a candle than curse the darkness
In Northern Ireland, I had often felt like a lone voice calling for wider access to patient data by accredited researchers. Now, I'm a member of a bigger UK organisation which would have a major...
Clara: Breaking the silence for neurodiverse voices
By sharing our unique experiences, we can help researchers and patients learn from each other. Open the door and see how it is. Give one step and you can always go back out.
Munisa: Be ready to have your say, never underestimate your value
After personal experience with a rare condition, I know how it feels to be bombarded with jargon and misleading articles. Getting involved allows me to have a say in all parts of the research process.
