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Science Festivals: Reaching out to new audiences about health data
It was an unusually hot September weekend. Many of you will have spent your time relaxing in 30°C sunshine at the beach or your local park. Our hard-working HDR UK team? We were talking about all...
Antony: Making my voice heard to support the millions of people living with chronic pain
Why do I do this? Some of it's about the pain and raising pain awareness, but it’s also about making a difference. The key is to keep asking questions, be curious, and be kind.
Ed: Better to light a candle than curse the darkness
In Northern Ireland, I had often felt like a lone voice calling for wider access to patient data by accredited researchers. Now, I'm a member of a bigger UK organisation which would have a major...
Clara: Breaking the silence for neurodiverse voices
By sharing our unique experiences, we can help researchers and patients learn from each other. Open the door and see how it is. Give one step and you can always go back out.
Munisa: Be ready to have your say, never underestimate your value
After personal experience with a rare condition, I know how it feels to be bombarded with jargon and misleading articles. Getting involved allows me to have a say in all parts of the research process.
Lynn Laidlaw: “I want to have an honest conversation about the strengths, and limitations, of data. And you can too.”
We hear from Lynn Laidlaw, one of HDR UK’s public and patient advisors who will be speaking at HDR UK’s Scientific Conference in December, about what public involvement means to her and how we...
Being part of the Public Advisory Board has been such a unique experience
Many of you are probably reading this because you are interested in joining the Public Advisory Board. To which I say, express your interest today!
The importance of engagement and involvement in health data research – reflections on the #AtoZHealthData campaign and HDR UK Voices
Engagement and involvement of patients and the public is key to all we do at HDR UK. We want to help everyone learn more about how their data can be used safely and securely to enable discoveries...
CO-CONNECT: A layperson’s perspective on using health data, building trust and the benefits of sharing
Karen Mooney, one of the Public and Patient Involvement team members for the CO-CONNECT project, guest-blogs on how getting closer to data has shifted her perspective.