The BHF Data Science Centre is a partnership between Health Data Research UK and the British Heart Foundation that works to deliver the data and data science needed to address some of the most important challenges in heart and circulatory disease research.
Personal monitoring data refers to information that is collected by wearable devices, such as health-tracking mobile phone apps and fitness watches. The BHF Data Science Centre wants to see if we can link the data collected by these personal monitoring devices and apps with other existing health information, such as an individual’s medical records or scans. We hope to link these types of information together to build a better picture of how cardiovascular diseases develop, and to more effectively be able to monitor and manage an individual’s condition.
As we begin our focus on the use of personal monitoring data, we are seeking to recruit 3-4 lay members to ensure the lay/patient voice is considered and embedded appropriately in this work, with the shared aim of improving the quality of research for maximum benefit. We would like to recruit lay members who have an interest in helping to improve how doctors and patients can trust the use of wearables to indicate new ways to prevent and treat cardiovascular disease.
What will the lay members do?
The lay members would be asked to join a virtual workshop on the afternoons of Monday 17th and Tuesday 18th May 2021, with an induction meeting held w/c 10th May. The lay members would participate in a follow-up discussion meeting held w/c 24th May to reflect on the workshop and help to shape our plans to develop appropriate patient/public involvement in this work as it develops.
Lay members would also contribute longer-term to our work in personal monitoring beyond the workshop. This would include informing developing research projects utilising personal monitoring data, as well as joining a new advisory group to contribute more widely to our work. Lay members will lend their views to discussions about different aspects of the possible use of wearables, helping to guide research with the aim of improving the prevention and treatment of cardiovascular disease.
Applications from individuals who have an awareness of, or are a user of, health-tracking mobile phone apps or wearable devices would be welcome, but this is not essential. We welcome input from individuals who do, and do not, use this technology, and you also don’t need to be pro-access when it comes to health data to apply for this role. We want to ensure there are a mix of thoughts and opinions – all we ask is that you are respective of the views of others and are interested in this area of work. We want to ensure work being carried out meets the interests of people affected by heart and circulatory disease, and addresses any patient and/or public concerns to earn public trust and confidence in how health data is collected, processed, used and safeguarded.
How to get involved
Email email@example.com by 12 noon on Monday 19th April 2021 with a completed application form.
Shortlisted applicants will be invited to an informal interview, over videoconference, on w/c 26th April 2021.
If you have any questions or need any help completing the form, please email Debbie.firstname.lastname@example.org or call 07845 261 431.
We look forward to hearing from you!
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