Health Data Research UK’s Better Care programme aims to improve people’s lives by equipping clinicians and patients with the best possible data-based information to make decisions about their care. Our vision is that by 2030, patients across the UK will benefit from healthcare decisions informed by large scale data and advanced analytics to identify what will work best for them.

Through Better Care, we support the development of healthcare systems that are continuously learning and integrate clinical practice, large scale data and advanced analytics in a cycle of constant improvement.

How will the lay member be involved?

This will be an opportunity for a patient or member of the public to provide strategic input by advising on the development, implementation, communication and ongoing monitoring of the Better Care Programme as well identifying priorities for future work. Involvement will primarily be through advising at the monthly Better Care Steering Group, although there may be ad-hoc requests to attend other important meetings or advise on key initiatives.  The lay member will help us ensure that the work of Better Care is meeting the needs of patients and the public.

We will support the lay members in developing close links with the Patient and Public Panels that have already been established as part of the broader Better Care community (or are planned for the future), the HDR UK Public Advisory Board and our ‘Using the Data Delivery Group’ Lay Members who all form an integral part of the HDR UK Governance Structure. All these groups and individuals are vital in helping us develop work that incorporates the interests and values of patients and the public in the use of health data. and will be of great support in this role.

If you’re interested in providing strategic advice to help drive and monitor progress on the Better Care Programme this could be the role for you.

Find out more in the Role Profile by Monday 1 February 2021

How to get involved

Email by 5.00pm on Monday 1 February 2021 with

  • Your name, email address and preferred phone number
  • An overview of no more than 500 words outlining
    • Why you are interested in the role
    • How your experiences and interests (professional and voluntary) make you a good fit for the role (referring to the role profile as appropriate)
  • Where you heard about this role – this is purely used to help us with our recruitment processes in the future

Find out more about key dates and the support you’ll receive in the Role Profile 

Remember, you don’t need to be pro-access when it comes to health data to become a Lay Member. There is a great value to having a mix of thoughts and opinions – all we ask is that you are respective of the views of others and are interested in this area of work.

If you have any questions or would like to find out more about the role email We look forward to hearing from you!