Purpose of the post

The Public Engagement and Involvement Officer will lead work on embedding public engagement and involvement across Health Data Research UK.  The role is integral to developing public and patient partnerships in our national work and co-ordinating activities across the research sites, Health Data Research Hubs, and the UK Health Data Research Alliance.  This is a high-profile role requiring significant collaboration with public engagement and involvement experts across the UK.

Main responsibilities

  • Support the development and delivery of an innovative public engagement and involvement strategy across Health Data Research UK
  • Develop, publish and share a set of standards for public engagement and involvement across Health Data Research UK and monitor progress towards delivering these
  • Provide support to the Public Advisory Board, ensuring the Chair and members are fully involved in between meetings, organising meetings, and act as the link between the members and the wider Health Data Research UK team
  • Co-ordinate feedback and input from the Public Advisory Board, and other public representatives, on Health Data Research UK’s projects and programmes
  • Establish and co-ordinate Health Data Research UK’s public engagement and involvement community of interest – organising quarterly meetings and leading channels to enable collaboration
  • Ensure work is co-ordinated across the research sites, Health Data Research Hubs and Alliance with a clear focus on meeting Health Data Research UK’s standards for engagement and involvement
  • Support the development of a positive culture, standards and values for patient/public partnerships across Health Data Research UK
  • Establish effective working relationships with strategic partners (including the NHS, National Institute for Health Research, Genomics England) to maximise opportunities for collaboration
  • Drive and promote innovative ways of involving and hearing from patients, carers and the public, challenging traditional methods
  • Undertake specific involvement and engagement activities (as appropriate, dependent on purpose and requirements), including but not limited to focus groups, engagement events, developing and undertaking surveys
  • Develop and manage a dedicated area for the public on our websites, detailing how patients and the public can get involved in our research and innovation and promoting transparency on existing work
  • Working in partnership with other organisations develop and implement a training programme for researchers, innovators and public and patient engagement leads on how to build effective partnerships.

Planning and organising

This post is part of a small and exceptionally busy team that delivers effective communication and engagement for this national institute.  The Public Engagement and Involvement Officer will be responsible for planning and delivery activity, aligned to the strategy, that meets the demands of Health Data Research UK.  This will require exceptional organisational skills, managing multiple projects at one time, to ensure work is delivered within deadline and to budget.  At the same time, the post holder will require a flexible approach to work to changing demands of the core team and based on external changes.

Problem solving

The Public Engagement and Involvement Officer will be expected to use problem solving skills to respond to and manage the diverse demands on the team.  The post holder will operate with independence, dealing with and responding to issues brought to their attention as a first point of contact for the public engagement.   The post holder will require confidence and resilience in dealing with enquiries, problem solving and decision making.

Decision making

The post-holder will make all day-to-day operational decisions for their own workload and on behalf of Health Data Research UK, where required.  With support from senior colleagues, the Public Engagement and Involvement Officer will identify, initiate and develop opportunities for collaborative working with relevant national and international partners and organisations.

Key contacts/relationships

The post holder will build and maintain effective working relationships both within Health Data Research UK, with colleagues working in our research sites, Health Data Research Hubs and with other key stakeholders.

Knowledge, skills and experience



  • Experience of working with patients, carers and members of the public with diverse interests
  • Experience of running public involvement activities
  • Experience of working in a complex organisation
  • Experience of organising and managing successful events
  • Experience of facilitating meetings and delivering presentations
  • A record of success in increasing patient/public involvement in health services or research
  • Experience of understanding and working within confidentiality requirements and Data Protection regulations


  • Excellent people skills, with skills in working with diverse groups of people
  • Excellent communication skills, including the ability to liaise and negotiate effectively
  • Proven track record of working under pressure
  • Excellent planning, organisation and time-management skills
  • Ability to prioritise a wide range of demands and requirements
  • Ability to develop effective working relationships
  • Solutions and delivery focused with an innovative approach
  • Excellent IT skills
  • Evidence of political awareness and sensitivity to health data access issues

More information and to apply