The Alliance will coordinate identification and adoption of standardised tools, techniques, conventions and technologies to drive greater use of healthcare data for research and innovation in a trustworthy way.
Solutions to many of the challenging health and wellbeing issues facing society require access to a secure array of health-related data. Rarely does one single organisation possess all the information required to address every problem.
The UK Health Data Research Alliance will unite expertise and act as a clearing house for best practice in the stewardship of the UK’s health data – including patient and administrative data from the NHS, genomic data and other molecular data – to enable faster, more efficient access for research at scale. This will speed up progress in science, medicine and healthcare at a pace never achieved before in the UK.
It is inspired by examples such as the World Wide Web Consortium, Human Genome Project and the Global Alliance for Genomics and Health, which recognise that by bringing together the right organisations, with the right expertise, we can harness opportunities to improve well-being, medicine, health and care for all.
The UK Health Data Research Alliance is co-ordinated by Health Data Research UK and was formally launched on 7 February 2019.
The following organisations are the current members of the Alliance. If you are interested in joining or would like to find out more, please visit the website at ukhealthdata.org
- The Alliance receives advice on ethics and information governance activities from an International Council of Reference.