One in two people will get cancer during their lifetime. Every year, almost 400,000 new cases are diagnosed in the UK, and cancer costs the NHS £7bn annually.
Access to high-quality health data opens up new opportunities to improve cancer care: using cancer data more effectively could improve cancer survival rates, potentially contributing to saving the lives of 30,000 cancer patients a year.
DATA-CAN – The Health Data Research Hub for Cancer – will work with patients across the UK to bring their clinical data together and use this data to help develop improved cancer treatments, give patients faster access to clinical trials, and understand how we can improve NHS cancer services. The Hub will be supported by patients, charities, clinicians, academic and industry-based researchers and innovators, and will involve cancer hospitals across the UK.
It aims to transform the ability of researchers to use high-quality cancer data, while ensuring all data is held securely and patients can decide how their data might be used.
DATA-CAN will deliver benefits for patients and healthcare professionals, improve the health of UK citizens, enable world-leading medical research and create new investment in healthcare.
This national hub has been founded by researchers in London, Belfast and Leeds.
DATA-CAN Director Dr Charlie Davie of UCLPartners said:
“Working across all four nations of the United Kingdom, DATA-CAN is a unique partnership of NHS organisations, patients, charities, academia and industry working together to improve cancer care by harnessing anonymous clinical and genetic data to provide cancer patients with faster access to clinical trials, and to enable the development of new and improved medicines and treatment approaches.
“The Hub will help us to provide the highest quality data allowing transformative change in cancer care”
Jacqui Gath, Cancer survivor and patient advocate (ICPV/YHCRP) said:
“Patients want their data to be used to improve care. In fact they’re often surprised it’s not used already.
“The work of the Hub and the new research it engenders will bring hope to the people who are diagnosed every year with this awful disease. One in two people will get cancer in their lifetimes and this Hub offers the hope and opportunity of saving 30,000 lives a year.”
Organisations involved in DATA-CAN: UCLPartners (lead institution) | | IQVIA | Queen’s University Belfast | University of Leeds & Leeds Teaching Hospitals | Genomics England | The Christie NHS | Foundation Trust | The Royal Marsden Hospital | Royal Brompton and Harefield NHS FT | Guy’s and St Thomas’ NHS Foundation Trust | NHS England (London) | One London LHCRE | Yorkshire and Humber LHCRE | Y&H AHSN | HDR-Scotland | HDR UK London | HDR UK NI & Wales | MedCity | HIRANI | Medicines Discovery Catapult | Swansea University | Macmillan | CRUK | Cancer52 | Children’s Cancer and Leukaemia Group, a cancer charity | ACT for Cancer | Bowel Cancer UK | European Data Saves Lives | European Alliance for Personalised Medicine | University of Edinburgh | University of Exeter | Alan Turing Institute