About the Hubs
Initially funded through the UK Research and Innovation Industrial Strategy Challenge Fund (ISCF) investment to kick-start the approach, these Hubs are formal collaborations between NHS, academic organisations, patients, charities and industry. Each Hub will be set up to demonstrate and drive the utility of expert health data science, based on an area of expertise. But this is not a research project – Hubs will be expected to provide data, curate the data and offer services for research and innovation.
Health Data Research Hubs will subscribe to the Alliance’s Terms & Conditions on information governance, ethics, intellectual property rights and commercial models as a data controller, and to the set of services in the Gateway
Over 100 organisations from the NHS and universities to charities and technology and pharmaceutical companies across the UK are involved in the hubs. The aim is to bring their collective expertise together to maximise the value of health data research potentially benefiting millions of people across the country.
List of partners within the Hubs
BREATHE – The Health Data Research Hub for Respiratory Health
BREATHE is enabling the use of respiratory health data in cutting-edge research and innovation, to address conditions such as asthma and COPD.
DATA-CAN – The Health Data Research Hub for Cancer
DATA-CAN is a UK-wide partnership that aims to unlock the power of health data to improve cancer care.
Discover-NOW – The Health Data Research Hub for Real World Evidence
This Hub will work with data from the NHS in London and Manchester, with appropriate controls and consent, to support research to find new ways to diagnose and treat disease and make care for...
Gut Reaction – The Health Data Research Hub for Inflammatory Bowel Disease
Gut Reaction will harness the power of health data to help identify the best treatment for each person with Crohn’s Disease or Ulcerative Colitis. Working with patients, academia and industry,...
INSIGHT – The Health Data Research Hub for Eye Health
INSIGHT is focused on eye disease and its application to wider health, including diabetes and dementia. It will use anonymised large-scale data and advanced analytics, including artificial...
NHS DigiTrials – The Health Data Research Hub for Clinical Trials
The Hub will focus on the development of a foundation service to improve the assessment of clinical trial feasibility - supporting improved planning and delivery of clinical trials in the UK
PIONEER – The Health Data Research Hub for Acute Care
By integrating information about how acutely unwell people access and use health services – such as from community health, the ambulance service and hospitals, PIONEER will allow innovative...
An independent assessment panel reviewed the bids for the Hubs in Summer 2019. The panel included:
- Professor the Lord Darzi of Denham (chair)
- Professor Peter Bradley
- Sarah Brooke
- Professor Dame Anna Dominiczak
- Dr John D. Halamka, M.D.
- Professor Derek Hill
- Professor Dame Sue Hill
- Professor Jackie Hunter
- John Jeans CBE
- Dr Dominic King
- Professor Carole Longson
- Dr Sam Roberts
- Dr Andrew Roddam
- Dr Margaret Rogers
- Professor Steve Thornton
Watch the Health Data Research Hubs Launch
As part of the work towards developing the Health Data Research Innovation Gateway, all Hubs are expected to take part in the metadata onboarding process to aid in data discovery.