Our response

Factors regarding data formatting make access to, and interoperability of, both clinical and research datasets either impossible or extremely difficult and time-consuming, requiring individual data mapping and curation. Therefore the establishment of common standards for healthcare data and metadata is a fundamental requirement for achieving our mission.

As the national institute for health data science, we have an important role in leading the development of best practice and in encouraging behaviours to improve the usefulness of data.

Our principles for data standards are applicable to all areas of HDR UK, including our research sites, UK Health Data Research Alliance, the Health Data Research Hubs, and the Gateway.

To find out more or get involved in this work please contact us by emailing enquiries@hdruk.ac.uk