Solutions to many of the challenging health and wellbeing issues facing society require access to a secure array of health-related data. Rarely does one single organisation possess all the information required to address every problem.
The UK Health Data Research Alliance will unite expertise and act as a clearing house for best practice in the stewardship of the UK’s health data – including patient and administrative data from the NHS, genomic data and other molecular data – to enable faster, more efficient access for research at scale. This will speed up progress in science, medicine and healthcare at a pace never achieved before in the UK.
It is inspired by examples such as the World Wide Web Consortium, Human Genome Project and the Global Alliance for Genomics and Health, which recognise that by bringing together the right organisations, with the right expertise, we can harness opportunities to improve well-being, medicine, health and care for all.
The UK Health Data Research Alliance is co-ordinated by Health data Research UK and was formally launched on 7 February 2019 with the following founder members:
The Alliance organisations are coming together to develop and coordinate the adoption of tools, techniques, conventions, technologies, and designs that enable and enhance the use of health data in a trustworthy and ethical way for research and innovation. Its members are formulating best practice and standards in areas such as privacy, transparency, public engagement, inclusivity and ethics to ensure that health data is accessed and used responsibly by researchers and innovators.