Patient and Public Involvement Opportunities

  • Our Future Health are searching for two public members with knowledge and understanding of how technology and products are used in healthcare to join their Technology Advisory Board.

    Our Future Health will be the UK’s largest ever health research programme, designed to enable the discovery and testing of more effective approaches to prevention, earlier detection, and treatment of diseases. It will collect and link multiple sources of health and health-relevant information, including genetic data, across a cohort of 5 million people that truly reflects the UK population.

    Our Future Health relies on large-scale technology, which encompasses a broad set of products and platforms. Our products and platforms will allow the programme to attract and retain participants over their lifetimes, link to and store health data safely and securely, and provide research access within a trusted research environment to approved researchers.

    You will help Our Future Health ensure that the public voice is represented and heard within the programme, and enable them to make decisions that will lead to the best outcomes for the public, the research community and partners.

    Find out more about the role and how to apply

    The Technology Advisory Board’s remit will be to advise the Our Future Health Executive Team on technology strategy and will report to the Chief Operations Officer and Chief Technology Officer. Members of the Board will be expected to:

    • Provide critical consideration and feedback on proposals
    • Contribute to discussions and decisions made by the Board in relation to technology and products
    • To advocate for demonstrable public benefit and the inclusion of the public voice in the design, build, and delivery of products and services within Our Future Health
    • To feedback to the Our Future Health Public Advisory Group on issues that may affect public perceptions or Our Future Health participants

    To apply, please complete the short application form here. You will need to give a short summary (300 words maximum) that describes your public involvement experience to date, any current experience/knowledge of technology systems and products used in health care or research, and your reason for wanting to take part.

    The deadline for expressing your interest in this role is Sunday 31 October 2021. If you have any questions, or would like to have an informal chat about the role, please email Angela at Angela.Polanco@ourfuturehealth.org.uk.

  • The Digital Interventions for South Asians with Cardiometabolic Disease (DISC) study is looking at inequalities in the use of digital healthcare, such as websites and phone apps, for cardiovascular disease and/or diabetes. This will help us understand how patient care in this area can be improved.

    To make sure that the research has the largest possible impact, it is important that the findings are accessible to the diverse South Asian communities in the UK. As such, the study want to involve people from a South Asian background, who have personal experience of cardiovascular disease and/or diabetes.

    The DISC study has launched an online survey to understand how and why people from South Asian background use health technology for cardiovascular disease and diabetes. All participants will have a chance of winning a £50 retail voucher as a token of the study’s thanks. 

    Click here to complete the survey

    If you have any questions, about the survey, please email the DISC Study team at: disc-study@ucl.ac.uk

  • The Secure Anonymised Information Linkage (SAIL) databank focus on anonymising and linking routinely collected data to help develop health and care research. To help them build and sustain public trust their Consumer Panel play a key role. As well as providing ideas on engaging with the public they advise on bids through approval processes, review information for a lay audience, offer advice on how to recruit reps to study steering groups and much more.

    The Consumer Panel have an ongoing recruitment process and are looking to ensure they have a range of people with different perspectives involved. If you’re based in Wales and are interested in getting involved, you can get in touch with the Swansea based team at dsbconsumerpanel@swansea.ac.uk

    Find out more and get involved

Diversity and Inclusion

At HDR UK, we embrace diversity and all the ways we are different – visible and non-visible alike and believe diversity and inclusion fortifies each part of our Institute. We are committed to creating and running inclusive opportunities for patients and members of the public to get involved and truly engage with our work. We are actively building relationships with a variety of networks and populations to enable us to shape our work through a diverse and representative range of views and ideas and ensure the opportunities are run in a way that meets the needs of people we are looking to involve.

Health data affects everyone and we want to encourage everyone who has an interest in health data (including whether or not you are pro-access to health data) to get involved. If you have any questions or any ideas or suggestions on how we can improve the inclusivity of our patient and public involvement and engagement activities please get in touch at feedback@hdruk.ac.uk or call 07597 552671.

Dr Amitava Banerjee, Associate Professor in Clinical Data Science:

“Research and healthcare data starts and ends with patients and the public. In fact, to have the highest impact, patients and public have a vital role to play at every stage.”

Have an opportunity to promote?

If you’re working on a project that would benefit from patient and public involvement and engagement that you’d like us to help promote, get in touch at enquiries@hdruk.ac.uk

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