Patient and Public Involvement and Engagement (PPIE) is vital in the development of different areas of our work, including those where there is a level of uncertainty. Involving patients and members of the public will help us become a trusted voice on these complex issues and will be key in helping build a system that is worthy of their trust and confidence in using health data for research. It will also help develop the public’s understanding and has the potential to create ambassadors.
Our achievements so far
To really benefit from working with patients, carers and the public, we encourage all teams and projects to be set up in a way that allows for meaningful involvement. To support our teams and partners achieve this, we worked with patients, members of the public, staff members and others experts in the field to develop a set of Guiding Principles.
Patients and members of the public have been involved in a range of activities across the HDR UK Institute and we’ve seen the impact and value this brings. This includes work by our Public Advisory Board, lay members in our Governance structure, our COVID-19 Patient and Public Involvement and Engagement Group and groups and panels set up to support the Health Data Research Hubs and research priorities.
We’re creating some case studies to showcase the impact patients and members of the public have made but in the meantime, find out how our Public Advisory Board have been involved.
We’ve been working to grow our patient and public involvement and engagement activities, and are keen to work with a wide range of people in as many different projects and areas of our work as possible. You can get involved in as much or as little as you like and through our growing range of opportunities we’ll help find something that suits your needs.
Opportunities to Get Involved
We’re committed to growing the impact patients and members of the public have in the development of our work and key decision making.
Join HDR UK Voices
HDR UK Voices is our growing network of people who want to use their voice to influence and shape our work. Join today and you’ll have the opportunity to make a difference. Our network is open...
Public Advisory Board Impact
Our vision and strategy can only be achieved if the public has trust and confidence in the use of health data for research and innovation. To support this, the Public Advisory Board, who have been...
Patient and Public Involvement Impacts and Outputs
We work with and learn from the needs and experiences of members of the public and people using the health and care system. These case studies and opinion pieces give some examples of how patients...
Involvement and Engagement Guiding Principles
To achieve our desired outcomes, the following Guiding Principles have been developed with patients, members of the public, staff members, members of our Public Advisory Board and others experts...
Frequently Asked Questions
Whilst there are many benefits to the access and use of the health data for research and innovation, we also know that people have a lot of questions too - here we help answer some of the...