Our responses to consultations

Here you will find Health Data Research UK’s responses to a range of consultations relevant to health data research and health data science.

UNESCO’s Open Science consultation

Deadline: 16 December 2024

HDR UK’s response to UNESCO’s Open Science consultation underscores the need for robust data infrastructure, federated analytics, and inclusive capacity building to tackle global crises. We make the case for breaking down data silos, engaging the public, and sustaining progress to maximise the impact of open science.

UK National Data Library: Technical White Paper Challenge

Deadline: 6 December 2024

HDR UK’s response to the technical white paper challenge outlines key principles for the National Data Library, emphasising health data as a highly valuable and visible floor. It proposes a secure, distributed ecosystem to connect health datasets to the National Data Library infrastructure, accelerating research, transforming the NHS, driving economic growth, and fostering innovation for public benefit.

NHS 10-year plan consultation

Deadline: 2 December 2024

HDR UK’s response to the NHS 10-year plan consultation sets out the urgent need to harness the full potential of health data to rebuild a smarter, more responsive NHS. Drawing on insights from the Sudlow Review, we highlight the critical role of health data in improving care, driving innovation, and reducing inequalities.

ICO’s draft Transparency Guidance

Deadline: 7 January 2024

HDR UK’s response to the draft Transparency Guidance underscores the importance of clear, trustworthy data practices to build public confidence and drive innovation. We advocate for stronger frameworks to enhance openness, accountability, and the effective use of health data for societal benefit.

Department for Health and Social Care (DHSC) Data Access Policy consultation

Deadline: 23 June 2023

HDR UK’s response to the DHSC Data Access Policy consultation emphasises the need for streamlined, secure, and equitable data access to unlock the potential of health data for research and innovation. We highlight key recommendations to enhance governance, build public trust, and enable data-driven health outcomes and care delivery improvements.