At HDR UK, we are committed to embedding Patient and Public Involvement and Engagement (PPIE) at the heart of health data research.

We are interested in learning about and improving early career researchers’ (ECRs) experiences of PPIE in health data research. We are conducting a survey to better understand the experiences of ECRs, identify challenges, and explore potential solutions.

What is PPIE?

PPIE is about the active participation of patients, carers, and the public in planning, conducting, and disseminating research. This involvement ensures that research is relevant, meaningful, and reflective of the needs and priorities of patients and the public it aims to benefit.

ECRs may experience unique challenges when incorporating PPIE into their research projects. Understanding these challenges is crucial for providing targeted support to ECRs and encouraging a culture of inclusivity and collaboration in research.

About the survey

This survey is open to ECRs interested in or engaged with PPIE, regardless of whether their work is directly funded or supported by HDR UK.

ECRs include researchers at various stages of their career, including;

  • interns
  • masters students
  • doctoral students
  • recent post-doctorates
  • those transitioning to independent research roles, usually within six years of receiving their PhD.

The anonymous responses collected through this survey will play a vital role in raising awareness, informing the development of tailored resources and training programmes, and supporting initiatives aimed at empowering ECRs in their collaborations with patients and the public. These responses may be included in future documentation, which will be available for both internal and public dissemination purposes.

The survey will take approximately 15 to 20 minutes to complete and will close on Monday 8 July 2024 at 23:59 BST. Your input is invaluable in helping us promote positive change.

Take part in our survey